Welcome to the Angelman Syndrome
Upper Northeast Region
Upper Northeast Region ASF News
Katie O'Neill , age 19 of Fairfield, beloved daughter of Paul X. O'Neill and the late Maureen Gerrity, passed away tragically along with her mother Monday, March 10, 2014. Katie and her Dad Paul were active in our ASF community. Please hold Katie, along with her Mother Maureen, and all their families and friends in your thoughts and prayers
SAVE THE DATE, SUMMER OUTING IS BACK!
We have booked the Emilson YMCA , Outdoor Pool Center for Saturday, June 13th, from 12:00-4:00. We can extend the time period until 5:00 for an extra cost.
There are three full sized pools, plus a shallow mushroom shaped waterfall pool with zero entry. Perfect for the kids, who love water! There are three pavillions for shade and grills on hand.
The outdoor pool center is located behind the main YMCA building at:
75 Mill Street
This Emilson YMCA is located just a short distance from Rt 3/ South East Expressway, so it is an easy hop off/on the highway.
We have yet to decide on the food and how we are going to handle it so please make comments or let us know your preferences as we are trying to provide a get together for our community but also be mindful of our budget.
The ASF Upper Northeast Region is a 100% volunteer organization run by parents and grandparents of individuals with Angelman Syndrome. Our mission is to support families both here in New England and our extended family of the Angelman community across the world. We strive to advance the awareness and the treatment of Angelman Syndrome through networking, education, and fundraising for information exchange and research. Our educational events are always free to attend. For more information on how you can support our organization please visit our website.
Summer BBQ & Swimming
June 13, 2015